Almost immediately after my last infusion two weeks ago, a
rash started forming all around my torso. I was fairly confident it was not
related to my poison ivy, as I had kept my shirt on while I unwittingly coated
my arms and legs in urushinol. My stomach and back looked like it was a testing
area for mosquitos with Zika, and it itched like crazy. I applied
hydrocortisone cream to the areas I could reach, but with Jennifer in Utah for
part of the time helping with our new grandson, I was left to itch by myself.
Meanwhile, the poison ivy rash on my legs and arms slowly dissipated.
My 54th birthday passed this week with a low-key
celebration. I had brunch with the family, then Jennifer and I attended Kurios, a steampunk Cirque du Soleil show. I was grateful simply to be around
for another birthday – as my friend Bill said, statistics show the
more you have, the longer you live. That maxim supports my suspicion
that the over 50% of statistics exist to support any desired proposition.
At Hopkins today I was seen by a nurse practitioner as Dr.
Hahn was in service. She looked at my rash and said that it looked to be
typical for nivoumab-induced dermal toxicity. Since the rash did not cover more
than 50% of my skin, it would not cause my treatment to be deferred. She also agreed
with my use of hydrocortisone. Unfortunately, the Hopkins pharmacy was moving
at a glacial speed, taking more than six hours (and 4+ hours more than
scheduled) to compound and deliver my nivolumab. I passed my time by delving into the history of Scotland, doing
further reading about the Border Abbeys, and mapping out possible
itineraries for our trip in October.
Enjoyed catching up on this blog. Hearing Olie was born is a joy, congratulations! Prayers always going up for KWB and family, you're an inspiration.
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