Earlier this year Bristol-Myers Squibb obtained FDA approval to have nivolumab administered every four weeks, instead of every two weeks. After Dr. Hahn told me that he was dosing virtually all of his patients on a 4 week schedule, I asked my Kaiser doctor whether I could shift to that schedule. She agreed, so today I have my first 4 week dose (a Q4W (480 mg) flat dose). An added benefit is that this Opdivo dose can be administered in 30 minutes instead of an hour, making my infusions not only less frequent but faster. The only downside is that my infusion nap isn't as long.
Four week intervals also means that scheduling my infusions becomes much simpler, especially because I'm going back and forth between DC and Utah. I fly to Utah on July 2, and will come back with Garrett on July 22. His homecoming will be on July 22 (Scott's Run building at 1 pm, y'all come). I'll have infusion #50 later that week. Then we'll go back to Utah for three more weeks. The week of August 12, we'll return to DC. On Saturday, August 18, I'll drive Garrett up to Pittsburgh so he can move into his dorm at Carnegie Mellon. My baby's going to college! Then I'll have infusion #51 the following week, along with my very last follow-up with Johns Hopkins. Whether I transfer my care to Utah may depend on whether my mets are responding to this treatment. If not, I'll likely pursue clinical trials in the DC area. But I'll worry about that later. I'm simply grateful for each day.
A four-week schedule also means that my blog posts likely will be less frequent, as I try to post when something happens related to my cancer. If you're looking for something else to read, I recommend the following:
Circe by Madeline Miller
Educated by Tara Westover
The Broken Earth trilogy by NK Jamison
Book 1: The Fifth Season
Book 2: The Obelisk Gate
Book 3: The Stone Sky
Station Eleven, by Emily St. John Mandel
American War, by El Akkad
The Handmaid’s Tale, by Margaret Atwood
The Sparrow, by Mary Doria Russell
Children of God, also bt MD Russell
Fourth of July Creek, by Smith Henderson
The Dispossessed, by Ursila Le Guiun
Hi Ken wow you are amazing. Stumbled across your blog accidentally, while I was looking up barium and the Stouder Pouch. My husband had his bladder removed and prostate goes too in 2004. The tumor had just started to reach outside of the bladder, but hadn’t spread. The prostate had a coincidental cancer starting. He goes for a body scan this next week. On the subject of voiding he had developed Pseudomonas at one time and the second time he ended up in the Hospital ICU step down unit. That was maybe 2 years ago. They were thrilled when the labs came back as E Coli. We learned that people have small amounts of those bacteria’s, but because voiding isn’t 100% they can manifest. He had his original urinary diversion at USC Keck. Your blog is good. Best wishes for you.
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