Thursday, April 4, 2019

CT, Infusion 59, and planning Utah's first walk against bladder cancer

Today I had another CT at Huntsman's Farmington Center. Once again, the ordered did not include a neck scan. Once again, while laying on the table I asked the tech to add it in and, once again, it was done. I made a point of mentioning it to Dr. Maugham's, who apologized and said he'd get it right next time. I have yet to receive all of my CT scan results -- by the time I left, only the abdomen and pelvis scan had been read, which showed no mets. But since I haven't had any mets in my abdomen and pelvis since May 2012, the NED reading of that part of my body was no surprise. Its the chest and neck where the real risk lies.

Dr. Maughan and I also spoke of how I'd noticed more of a rash on my calves, scalp, face, and occasionally on my shoulders. The rash is a low-grade indication of a manifestation of dermal toxicity. I've had an increase of itching, especially on the backs of my calves. It's still grade 1 and a minor side effect. When I get into a spa or sauna, my calves itch like crazy until the skin gets warmed up. I think it's in part due to the drier climate in Northern Utah. I occasionally use a heavy lotion such as Cetaphil, which helps for a day or so. But I'll be monitoring it. May labs were 5x5. My infusion of nivolumab likewise was routine. On the way out I scheduled my next three appointments, each 4 weeks apart.

I've also been planning Utah's first ever BCAN walk to end bladder cancer. I'm planning to hold it on Saturday morning, May 4, in Memory Grove Park in Salt Lake City. You can register to attend, or just make a donation, by clicking on the walk link. Spread the word! The bright orange BCAN walk t-shirts are also useful during deer hunting season.