From time to time, I have been asked how I have learned to live with the fact that I have a type of metastatic cancer that has a five year survival rate of about 5%. The short answer is that living with cancer is better than the alternative.
Today I want
to talk about the longer answer, however.
It centers on how we choose to react to events that we do not
control. Each of us are agents unto
ourselves and have constant opportunities to choose to “do many things of our
own free will” (see D&C 58:27-28). Lehi
explained how we are free to choose liberty and eternal life, or to choose
captivity and death (see 2 Nephi 2:27).
Owning our
choices is a fundamental aspect of God’s Plan of Salvation. The Lord told Moses, “I [have given] unto man
his agency” (Moses 7:32). Our Heavenly father told Adam and Eve, “Thou
mayest choose for thyself” (Moses 3:17). King Benjamin taught “That ye may
live and move and do according to your
own will” (Mosiah 2:21; see Neal A Maxwell’s March 16, 2004 talk,
“Free to Choose”).
When I taught
the Gospel Doctrine class, I occasionally would reference a book titled, Free Agency, and How To Enforce It. Its author explains how we can make others
choose what we believe to be correct decisions.
I think the author’s last name is Zebub, first name Bella. I see some of you looking it up on your
smartphones. Make sure you put in the
author’s first and last name.
Speaking of
Beelzubub, we are told in the Book of Moses that Satan “sought to destroy the
agency of man” (Moses 4:3). “For,
behold, the devil . . . rebelled against me . . . ; and also a third
part of the hosts of heaven turned he away from me because of their
agency” (D&C 29:36; emphasis added).
Lucifer was very angry then, and he is very angry still—choosing to
strive to make “all men [to] be miserable like unto himself” (2 Nephi 2:27). Latter-day revelation tells us
that “It must needs be that the devil should tempt the children of men, or they
could not be agents unto themselves” (D&C 29:39; emphasis
added). “Wherefore, the Lord God gave
unto man that he should act for himself. Wherefore,
man could not act for himself save it should be that he was enticed by the
one or the other” (2 Nephi 2:16; emphasis added). That is why there is “an opposition in all
things” (2 Nephi 2:11).
Among the
oppositions in my mortality is the fact that I have terminal cancer. I do not control my cancer. My doctors do not control it, either: there is no cure. So how do I live with a diagnosis of death?
How do I order my affairs? How do I reconcile myself to the disappointment that
I probably won’t be collecting Social Security?
From one
perspective, having metastatic cancer doesn’t really change things too much,
because all of us have a terminal disease. It’s called mortal life. The Apostle
Paul said (or maybe it was Mel Gibson in Braveheart) all men die (see 1 Corinthians 15:22). All life, like my cancer, ends in death. We sing a hymn
with the line, “death unlocks the passageway into eternity” (Upon the Cross of Calvary, No. 184).
During the
course of my cancer, I have come to understand that mortal death is vastly overblown.
Last September, I wrote the following:
Yesterday afternoon my 25 year old
daughter, Chelsea, gave birth to her first child, and my first
grandchild. My granddaughter is has a big head (of course), a strong cry,
and a piercing stare. All is well with everyone involved.
Chelsea and I had agreed that during the actual delivery, only the doctor, her husband, and Jennifer should be present. I sat in the room but on the other side of a curtain, and listened, as the doctor was giving instructions, Jennifer was counting, Josh was reassuring his wife, and Chelsea was alternating between pushing and catching her breath. I had a quiet conversation with God as this went on for about an hour. I realized that, in many ways, the curtain was like a veil separating me from my family. I could sense their presence, send my prayers and light and love to my daughter, and experience the event, but I was not physically present.
Death will be like this, I believe. My soul, and all that I am, will continue on. I will not be physically present, but still will be in their presence, will be able to send my prayers and light and love to my family, and experience their joy and sorrows. As Sullivan Ballou wrote to his wife the week before he died in the First Battle of Bull Run, "I shall always be near you; in the gladdest days and in the darkest nights . . . always, always, and if there be a soft breeze upon your cheek, it shall be my breath, as the cool air fans your throbbing temple, it shall be my spirit passing by. [D]o not mourn me dead; think I am gone and wait for thee, for we shall meet again."
Holding my granddaughter, I felt great joy and rejoicing in my posterity. The next generation of my family has started. Life continues on.
Chelsea and I had agreed that during the actual delivery, only the doctor, her husband, and Jennifer should be present. I sat in the room but on the other side of a curtain, and listened, as the doctor was giving instructions, Jennifer was counting, Josh was reassuring his wife, and Chelsea was alternating between pushing and catching her breath. I had a quiet conversation with God as this went on for about an hour. I realized that, in many ways, the curtain was like a veil separating me from my family. I could sense their presence, send my prayers and light and love to my daughter, and experience the event, but I was not physically present.
Death will be like this, I believe. My soul, and all that I am, will continue on. I will not be physically present, but still will be in their presence, will be able to send my prayers and light and love to my family, and experience their joy and sorrows. As Sullivan Ballou wrote to his wife the week before he died in the First Battle of Bull Run, "I shall always be near you; in the gladdest days and in the darkest nights . . . always, always, and if there be a soft breeze upon your cheek, it shall be my breath, as the cool air fans your throbbing temple, it shall be my spirit passing by. [D]o not mourn me dead; think I am gone and wait for thee, for we shall meet again."
Holding my granddaughter, I felt great joy and rejoicing in my posterity. The next generation of my family has started. Life continues on.
Looking back,
I now realize that I was prepared for cancer by parenthood. I don’t mean to
compare metastatic cancer to parenthood.
One is a series of tragic events, a parade of disappointments that leads
to ongoing frustration, anger, grief, and eventually acceptance. The other is just a disease.
Let me share
with you the story of how I learned in parenthood to let go of something I
don’t control, and to trust God. It is a
story filled with unexpected epiphanies, and how the moments of greatest
parental pain taught me lessons that have formed the foundation of how I am
living with cancer. This story
illustrates how unexpected lessons that come from adversity can later provide a
deep wellspring of water for a parched soul.
And this story illustrates how the Lord’s ways are not my ways (see
Isaiah 55:8).
Some of you
know snippets of this story, as it has played out in this ward over the past
eight years. I never have subscribed to
the heresy that one must always appear to be perfect in church, because church
is a hospital for sinners, and never a showcase for saints. And we “all have sinned, and
come short of the glory of God” (Romans 3:23). A ward family is, in the words of Alma, “willing to bear one another’s burdens, that they may be
light; and are willing to mourn with those that mourn; and comfort those that
stand in need of comfort” (Mosiah 18:8-9).
Paul taught that to bear one another's burdens is to
fulfill the law of Christ (see Galatians 6:2).
Today, I ask you to bear my burdens with me.
In 2005, my son Spencer was 14 years old, and was in eighth grade in middle school. Unknown to
Jennifer and me at the time, while over at friends' houses to play video games
or to hang out, he started drinking alcohol and smoking pot. His drug and alcohol abuse continued as he
started his freshman year of high school. His grades plummeted. He became increasingly withdrawn from the
rest of the family, and was verbally, emotionally, and at times physically
abusive. Between December 2005 and May
2006, our home was a place of ongoing warfare.
Spencer would tell you now that he was self-medicating because he
was deeply unhappy. He was angry at his
lack of self-confidence and felt considerable pressure and stress from his
parents and the church to measure up. At
the time, he did not have the tools to recognize and articulate the causes of
his anger. Jennifer and I sought the
assistance of doctors, professional counselors, as well as church leaders. Despite our collective efforts, Spencer
continued to abuse alcohol and drugs. We
felt imprisoned in our own home, fearing the next explosion, wondering if our
lives were in danger.
After we felt that we had exhausted every other option, Jennifer and
I made the decision to have our 15 year old son removed from our home and
placed in a therapeutic wilderness treatment program. We prayed repeatedly about this decision but
received no definitive answer. At 4 am
on Wednesday, May 10, 2006, we woke up Spencer and explained that he was being
placed into a program, then withdrew to a hail of savage words. We had contracted with a team of
professionals who escorted our son out of our house and delivered him to the
program.
After Spencer left, Jennifer and I knelt in prayer. For more than an
hour we wept as we poured out our hearts to our Father in Heaven. Only then did we receive confirmation that we
had made the correct decision. As Moroni
taught, “ye receive no witness until after the trial of your faith”
(Ether 12:6).
After three months, Spencer thought that he was ready to return
home, and we wanted him back home.
Through the family therapy of the program, we had made good progress in
understanding and discussing our son’s underlying issues. Spencer wrote out a series of promises
governing his behavior at home. We
enrolled him in a private school for his sophomore year, and developed
scaffolding to support him in his good choices.
After several months, however, Spencer began backsliding on his
commitments. One of the first things to
go was Spencer’s willingness to attend Seminary. What is a parent to do if his
teenager changes his mind and refuses to attend those 6 am classes? We counseled with the bishop, and searched
for the answer in that book about free agency. Eventually we grudgingly
relented. We as parents were not yet willing to grant to Spencer his free
agency. After all, we as his parents
knew better. Why couldn’t he be reasonable and do it our way?
Do you see the conflict here? Looking back, I now understand that,
by denying Spencer his agency, we as parents took upon ourselves his choices.
Even though my intentions were good, every time we made Spencer get out of bed for Seminary, or
dragged him to church, or made him join us for family prayer, or family home
evening, or participate against his will in other church-related events, we
were depriving him of his agency. And we were using church teachings as a wedge
to separate us from our son. The greater sin was upon me.
Eventually we learned to disengage our home rules from traditional
LDS checklists, and instead insisted on some fundamental points: Love. Trust. Decency. Respect. We learned
that we could not control Spencer’s choices, but we could enforce our home
rules. If Spencer chose to not abide by those home rules, then he was choosing
to not live at home.
During Spencer’s sophomore year in high school, he continued to vary
from his prior promises and our basic principles. He once again was abusing alcohol and
drugs. Police came to our home several times. By then end of the school year, Spencer was facing a choice to either enter the
Fairfax County juvenile detention system, or enter a private treatment program.
He chose the latter, and on Saturday, June 16, 2007, the day after Spencer
finished his sophomore year, he entered a treatment program that focused on
teaching the 12 Steps, and the timeless truths of the Serenity Prayer:
God, grant me
the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one
day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He
will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Between August 7-9, 2007, Jennifer and I spent three
days with Spencer in family workshops at the conclusion of that program. One of the sessions was called “clearing the
slate.” I was to sit knee to knee with Spencer, looking straight into his eyes,
and tell him of all of the hurt, and pain, and sorrows, and regrets, that I had
felt as a result of his use of drugs and alcohol. He was to say nothing, but simply accept it. For more than 45 minutes, I spoke of the pain
he had caused to our family. I spoke to
the tears and sorrow. I was raw with
emotion as I unburdened myself to my son.
Spencer silently accepted my firehose of sorrow.
As my grief ebbed and the torrent of my words began
to slow, I said something totally unplanned, and unexpected. I looked my firstborn son in the eye, and
said, “Spencer, I want you to know of my expectations of you in the
future. From this day forward, I expect
nothing from you.” I saw Spencer’s eyes
narrow, as he tried to understand what sounded initially like an insult. I paused, then added, “I am releasing you
from all expectations that you felt that I had imposed upon you. I want you to live your own life, free of any
expectations that you feel I have imposed upon you.”
With those words, I was finished cleaning the
slate. I felt wrung out and
exhausted. As Spencer and I hugged, with
tears in our eyes, I felt a mighty burden being lifted from my shoulders. Until then, I had not understood the great
weight that I had been carrying. I had
taken upon myself the consequences of my son’s actions. I had saddled myself with a burden that never
was mine to carry. In releasing my son
from the burden of my expectations, and giving him the dignity of his own free
agency, I found that I had freed my own soul.
I learned then that I cannot change my son, nor any
other person. That “mighty change” can
only come from within (see Alma 5:14).
Each of us, including my son, is an agent to him or herself. I knew these truths were part of the Gospel
of Jesus Christ, but until I sat knee to knee with my son, I did not understand
what it truly meant to accept the things I cannot change.
I have learned that honoring agency means letting
our children suffer the consequences of their actions. I find an analogy in teaching our children
how to ride a bike. If we never let go of the bike, then our child will never
learn to balance, to ride on his or her own. But if we let go, our child may
crash, get hurt (or maybe even die!). But eventually a parent has to let go,
frequently before the parent is ready, and usually because the kid pedals
faster than the parent can run. And then we watch our child with a mixture of
apprehension and joy.
So it is with mortal life. The scriptures teach that every person with
moral agency must be responsible for his or her own choice. This principle was
established even before the world was created, when “a third part of the hosts of heaven
turned” away from their Father “because
of their agency” (D&C 29:36).
In other words, one third of God’s children – well over 50 billion
individuals - deliberately chose not
to undergo the mortal experience by choosing not to go on choosing. Through
their choices, God’s children separated themselves from their family. And their parents watched them go.
Four years and three months after my son taught me
the lesson of accepting things I cannot change – and nine months after Spencer
committed to sobriety – I was diagnosed with bladder cancer. From what was initially a hopeful diagnosis
and optimistic treatment plan, the news gradually worsened and my prospects
grew less promising. On April 12, 2012, a CT scan found that my cancer had
metastasized outside of my bladder; three weeks later doctors found 12 positive
lymph nodes. Last August another scan
found the cancer had spread to my neck.
I’ve already passed the median point of survival for those with my type
of cancer, so now I’m in bonus time.
I accept that I have no control over my cancer. Because of the lesson my son taught me on
August 8, 2007, cancer is not a burden to me.
I have learned to “let go, and let God.”
As the proverb says, “Trust in the Lord with all thine heart, and lean
not unto thine own understanding” (Prov. 3:5). Through living with cancer, I
have learned to place my trust in the Lord, and live each day with gratitude.
Two weeks ago, Jennifer and I attended an AA
meeting, where Spencer spoke in celebration of the three year anniversary of
his commitment to sobriety. He will be the first one to tell you that he has
felt a mighty change as a result of his choices and actions. He is at peace
with himself, and has learned how to quiet the persistent whisperings that led
him to alcohol and drugs.
Might I give one example of Spencer’s growth as a
result of his adversity? When Spencer
was about 18, and still using, I had a conversation with him. He said that he
was not happy, and asked me what made me happy. I replied that I found the
greatest joy when I was serving others. He looked at me like I had two heads,
and the conversation ended. Three years later – after Spencer had been sober
for about a year, and had started to act as a sponsor to others in AA – we were
having another conversation. He said, “Do you remember when you told me that
you found happiness by serving others? I’m beginning to understand that now.”
Looking back, I find it unlikely that I would have
chosen my particular path through parenthood. Who would have thought that my
learning to let go of the consequences of my son’s choices would have prepared
me for living with cancer? Once, when I was relating this insight, Spencer
smiled and said, Yeah, Dad, that’s why I started using in eighth grade,
because I knew you were going to get cancer 6 years later and needed to learn
some lessons first.” Gee, thanks, kid.
At times, I
have marveled that, the moment that a man and woman are sealed in the temple,
they have obtained all of the saving ordinances necessary for salvation. What
is the point of the remaining years, I have wondered? The scriptures repeatedly tell us that we
must “endure to the end” (e.g., D&C 14:7). I now understand that one of the
post-celestial marriage lessons is to learn that our children must learn
through opposition and adversity the consequences of their own choices.
In this
month’s Ensign, Elder David Bednar addressed the heartache that parents can
feel when their children walk on wayward paths. (See Faithful Parents and Wayward Children: Sustaining Hope While Overcoming Misunderstanding, March 2014 Ensign, at 28.)
Elder Bednar urged that parents continue to pray for their children, as did
Alma for his son, to seek a heavenly pull that entices a wandering child
eventually to return to the fold. The Apostle emphasized, however, that no
spiritual influence or covenant can override the moral agency of a child.
Ultimately, a child must exercise his or her own moral agency and choose to
respond in faith, to repent with full purpose of heart, and act in accordance
with the teachings of Christ.
I think that
some in our society, and perhaps even in this ward, seek to protect our
children too much. In this area, it seems to be uncommon to encourage our teens
to hold jobs while in high school or even college. We provide for all of our
children’s wants and needs instead of letting them learn the benefits of
delayed gratification. We immediately intervene with the school instead of
letting our child fail a class. We never let go of the bike. What lessons are
protective parents providing? By usurping the agency of our children, are we
both crippling our children, and ourselves?
The paradox
is finding joy in life’s difficulties. Dutch theologian Henri Nouwen wrote
that,
"by greeting life’s difficulties with
something other than denial, we may find something unexpected. By inviting God into our difficulties, we
ground life – even its hard moments – in joy and hope. And we learn the way to a deeper love for
others.
How can we learn to live this way? Many of us are tempted to think that if we
suffer, the only important thing is to be relieved of our pain. We want to flee it at all costs. But when we learn to move through suffering,
rather than avoid it, then we greet it differently. We become willing to let it teach us. We even begin to see how God can use it for
some larger end. Suffering becomes
something other than a nuisance or curse to be evaded at all costs – it becomes
a way into deeper fulfillment.
Ultimately, suffering means facing what wounds us in the presence of the
One who can heal.”
See Turn My Mourning into Dancing – Finding Hope in Hard Times by Henri Nouwen (2004).
In the April
2012 General Conference, Pres. Eyring recalled the awe that he felt when, some
33 years earlier, he listened as President Spencer W. Kimball asked that
God would give him mountains to climb. President Kimball said: “There are great
challenges ahead of us, giant opportunities to be met. I welcome that exciting
prospect and feel to say to the Lord, humbly, ‘Give me this mountain,’ give me
these challenges.” (Mountains to Climb, May 2012 Ensign).
I am told
that, when working out, one must continually increase the amount of weight
lifted, or improve your time when running, or else your progress will slow. (I
have no personal knowledge of these things.)
Brothers and
sisters, are you seeking mountains to climb? Or do you seek the easier way?
Parents, do you seek to put your children’s feet on mountain paths? Or do you
seek to smooth the way, so they will not have to work as hard? And if so, why
are you choosing to weaken your children?
To the youth
– raise your heads – are you taking the easiest path through life? Or will you
choose to “stand as a witness of God at all times and in all things, and in all
places that ye may be in, even until death”? (Mosiah 18:9).
All of you: Are
you grateful for your burdens? Do you give thanks to God that your life is
hard?
Over the past couple of days, Jennifer and I pruned many of the bushes in our front yard. We cut,
reshaped, and removed many of the branches. It’s hard to believe that pruning
will help those bushes have more vitality and grow better. In John Chapter 15,
Jesus told his followers that they were as intimately related to him as
branches are to a vine. But He added that they still needed to be pruned to
bear more fruit. So it us with each of us when we are pruned.
When we are
being pruned – being cut, reshaped, having old growth removed – are we
grateful? Nouwen wrote how gratitude must be cultivated:
For gratitude is not a simple emotion or
an obvious attitude. Living gratefully
requires practice. It takes sustained
effort to reclaim my whole past as the concrete way God has led me to this
moment. For in so doing I must face not
only today’s hurts, but the past’s experiences of rejection or abandonment or
failure or fear. (Nouwen, ibid.)
Do we
willingly submit to God’s pruning work, are we hopeful for what can happen in
us and through us? Or does it make us sad?
Grateful people learn to celebrate even amid
life’s hard and harrowing memories because they know that pruning is no mere
punishment, but preparation. When our
gratitude for the past is only partial, our hope for the future can likewise
never be full. (Nouwen, ibid.)
Cancer has
not weakened me, it has strengthened me. Even as it shortens my mortal life, I
give thanks that the Lord has been merciful to me, and allowed me to learn the
lessons that I have.
My prayer is
that each of us can embrace our adversities; that we love the lessons that are
given by opposition in all things; that we give thanks for our agency; and that
we accept the things we
cannot change, seek the courage to change the things we can, and find the wisdom
to know the difference.
In the name of Jesus Christ, Amen.
Wish we could have been there to see this delivered. Thank you for sharing this. Love you.
ReplyDeleteYou have shared more spiritual wisdom since you've had cancer than I remember you ever sharing B.C. Cancer is not good, but I can't think of anything more important than spiritual wisdom. Thanks.
ReplyDeleteThank you, Ken, for sharing this. I have been struggling more lately with my husband's medical condition and its impact on our family. I needed to read this. I think so much is about giving up perceived control or need to control, and exercising faith. It is so hard for me, I always think I have to do it on my own. You have strengthened me.
ReplyDeletegave me much reason for pause thank you
ReplyDelete