365 days have passed since I had the CT scan that showed my cancer had
spread outside of my bladder. There was a period of time that I
wondered if I would see this milestone. My odds of survival gradually
creep higher with each day, but they are still long. I have been
liberated by letting go of my cancer battle, and placing my life in the
hands of the Lord. I no longer worry about whether I will have
secondary tumors form. If it happens, so be it. Cancer does not
govern my life.
I still struggle with the side effects of my balky neobladder. Unlike cancer, I have not
surrendered with regard to therapy for my neobladder and incontinence, because there
is still some medical options for addressing that. Perhaps that
reflects the limits of my faith -- only when there is nothing more that
man can do, do I place my trust in God. If that is true -- and I'm still pondering it -- it shows how weak my
faith really is, and how much more I need to grow.
I am grateful for each day, and for my new perspective on living. I would
like to say that ever minute of every day is well-spent, but that would
not be accurate. I still watch ESPN on occasion, and at times have not shown my gratitude to family, friends, and colleagues. I try to be more mindful, but it is so easy to
slip into old habits. I find my muscle memory to be surprising -- I would have expected
that cancer would have ingrained a mightier change upon my soul. It is
more accurate to say that living with cancer continues to teach me lessons that I am still
learning.
Wow! What an amazing attitude. You are such a great example. We pray for you daily. We love you and hope that your neobladder issues can be resolved soon.
ReplyDeleteLove,
Jamie and family
I don't know, Ken. Could it be that your faith -- just as strong -- is reflected in your trust that God can guide your caregivers to find a way to help you with the incontinence? You have, in this instance too, put it in God's hands. You aren't railing against the heavens; you are a man searching for help where help is to be had.
ReplyDeleteYou know the joke about the guy who is shipwrecked on the desert island who beseeches God for help. The man has rejected an offer of rescue from the yacht passing by, the native canoe passing by and the helicopter that hovers overhead, assuring all of them that God will help him. And we know what God tells the guy. Ken, you'll never be that guy.
Hang in there, my friend --
Cyn
Hi Ken,
ReplyDeleteI came across your blog and wanted to thank you for sharing. My father was just diagnosed with BC - he is seeing Gary Steinberg. I had a few questions if you wouldn't mind answering.
1. Did you like your experience with Dr. Steinberg?
2. Would you recommend the Neo Bladder?
Hi! My name is Lucia and for my high school science project I am working on the linkage between hope and cancer. I would appreciate if you could fill out this confidential survey. It would help a lot. Thank you!
ReplyDeletehttp://www.surveytool.com/s/SA4FC0F46D