I have been carefully monitoring my nighttime sleeping and
leakage habits since the July 27 procedure to reopen my neobladder. The first thing I’ve noticed is that I have
gotten used to sleeping while wearing a Depends. The two nights that I tried not wearing it, I tossed and
turned, probably because I was worried about peeing on the mattress. I hope to wean myself of the habit as
soon as I am confident that I am fully continent during the night. I'm far dryer than before, but not completely dry.
I’ve noticed that what and when I drink fluids
dramatically affects my nighttime urinary habits. I guess it makes sense, but it didn’t used to be that way
before surgery. Oh well, that was
then. Now, I need to avoid Diet
Coke after 6 pm or so, and any fluids after 8 pm or so, otherwise I am far more
prone to leak at night.
My regular urine flow seems to be fine, although sometimes I need to
work to contract my neobladder more than other times. I
can’t say if the scar tissue is re-forming, but if it is, it will become
progressively more difficult to empty my neobladder. Time will tell.
I have been sleeping longer each night since my neobladder
was reopened – the longest so far is about 5.5 hours. The difference between that and 2 hours at a time is
huge. I feel like I have more
energy and am less lethargic.
Again, it makes sense, but until you’ve experienced three straight
months of no more than two hours of sleep at a time, it’s hard to know what it
feels like. Mothers are quick to
tell me that it’s like being a new mom, and I’m not going to argue. All I know is that getting more sleep
is a good thing.
For the past four days I’ve been in Asheville NC with Jennifer,
Spencer and Garrett. We saw that
last desperate gasp of the guilded age known as Biltmore – we loved the grounds
more than the castle – did a Segway tour (Garrett has a new item for his
Christmas list), the boys went zip-lining, Jennifer and Spencer joined the
weekly community drum circle, we went to lots of artist studios, at lots of
good food, reconnected with friends, and had a good time. It is a long drive from DC,
however.
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